Real stories

Harry had his first seizure in September 2016. They continued, becoming more physical, until Harry was diagnosed with Rasmussen Encephalitis in summer 2017. Mum Nikki shares their story.

As Millie celebrates her milestone birthday, mum Sam reflects on the past 18 years and talks about Millie's complex medical needs, therapies and support at The Children's Trust School.

In December 2017 Rafe was born prematurely at 29 weeks. Mum Nicola shares their story. 

Joey, 16, tells us about her brain injury at the age of 12, determination to recover and how her ‘second chance’ has led her to inspire others.

In September 2020, 11-year-old Mikail was on his way to school with his dad, Faisal, when their car was involved in a serious accident. Mum Ro shares their story.

Henry was diagnosed with encephalitis at the age of four. Mum Andrea talks about changes in his behaviour following his brain injury and seeking support.

Mia sustained a serious brain injury during a quad biking accident. Mum Angela shares their story.

Many diseases can mimic encephalitis, making it hard to diagnose. Mum Sophie explains what this meant for her three-year-old daughter and shares Blair’s progress at The Children’s Trust and back home.

Joanna is mum to 7-year-old Sebby who has an undiagnosed disability. Her blog covers the challenges they face regarding access, schooling and friendships – but also the positives for the family.

In 2015, 15-year-old Lewis was left with a brain injury. Now aged 21, Lewis shares his experience of school, college and university.