"The operation to remove a grade five tumour went well, but later Ethan developed 'cerebellar mutism' and 'posterior fossa syndrome' – he couldn't speak and didn't have any control over his body.
Ethan was having chemo, physio and rehab, in between 12 operations. I was with him 24/7, learning as I went.
You want to help your child but you've never done it before, not like this. That struck me at The Children's Trust, the staff supported me just as much as they supported Ethan. I found it difficult to leave Ethan, and when we arrived I was surprised by The Children's Trust staff telling me to go for a cup of tea. I didn't really know how to leave him. Ethan too was anxious. He didn't want to be away from home any more. But I stayed in the parent's accommodation which was fantastic, and we drove home every weekend.