Finn was diagnosed as having a mitochondrial disease, a chronic, genetic disorder, at just seven months old. “I knew something wasn't quite right about a month after he was born,” explains mum Debbie. “I couldn't say what it was, mothers instinct I guess, even though he was my first born.” After the diagnosis his doctors advised that Finn would probably not make it to his first birthday.
“Finn was generally a very smiley happy baby, but we did have episodes of screaming and him not sleeping, which would then lead to some very nasty seizures.” As Finn began to grow, so too did his needs. “Life was hard,” said Debbie, “we were just taking one day at a time.”
When Finn was 4 years old, the family grew as younger sister Maisie was born. “I can’t put into words how special the bond between them is, it’s just amazing! But it became incredibly difficult having to be housebound when Finn was home, and it started to have an effect on Maisie.” As he got older, Finn became increasingly unhappy at home. “He needed a lot of stimulation, and enjoyed being sociable,” explains Debbie, “but it would take us two hours to get out the house just to go for a walk. And the more he grew the more I just couldn’t manage.”