Useful links

This section offers a list of other brain injury organisations which may be helpful

Special education

British Institute of Learning Disability Charity committed to improving the quality of life for people with a learning disability. Independent Panel for Special Education Advice (IPSEA) National charity offering free and independent advice on Local Education Authorities' legal duties to assess and provide for children with special educational needs. The National Association for Special Educational Needs  Nasen aims to promote the education, training, advancement and development of all those with special and additional support needs. Anti-bullying alliance Free online training for professionals focusing on the issues around bullying and special education needs.

Family support and information

Affinity Hub A website providing emotional support to parents and carers of children with special needs.  Barnardos  National children's charity providing services including: counselling, fostering and adoption, vocational training and disability inclusion groups.  Bibic A national charity offering practical help to families caring for children with conditions like autism, cerebral palsy, Down’s syndrome, developmental delay, brain injury and specific learning difficulties like ADHD, dyslexia and dyspraxia. BIRT The Brain Injury Rehabilitation Trust (BIRT) is a leading UK charity providing residential and community based rehabilitation services for adults with acquired brain injury.  Through its specialist services it aims to enable people to function more independently in the wider community and develop their lives as they choose.   The Brain and Spine Foundation The Brain and Spine Foundation helps people affected by brain and spine conditions in the UK. Its services include a helpline and a range of information.  Brainbox A children’s charity established in the North-East of England by a group of dedicated people who have personal and professional experience of living or working with a child or young person with an acquired brain injury.
Speak to other parents on freephone 0800 012 4027 Brainstars A website for parents that offers information and support on a broad range of subjects such as medical issues, nutrition, therapies, disability & family rights, holiday advice, suggestions & offers, clothing, important funding advice and equipment.  The Brain Tumour Charity Delivers breakthrough support, information and research on brain tumours.  Breathe On UK Charity which specifically helps families with children on long-term ventilation (LTV). The Challenging Behaviour Foundation A national charity aiming to improve understanding of challenging behaviour, empower families with information and support, and help others to provide better services and more opportunities to people with severe learning disabilities who display behaviours that challenge. Child Brain Injury Trust Formerly known as C-bit, the Child Brain Injury Trust provides non-medical services to families affected by childhood acquired brain injury across the UK. These services include information, a helpline and training for parents, carers and professionals.  Contact a Family A UK-wide charity providing advice, information and support to the parents of all disabled children - no matter what their disability or health condition. The Council for Disabled Children The umbrella body for the disabled children’s sector in England, with links to the other UK nations. Counselling Directory A website running a confidential service that encourages those in need to seek help and to connect individuals with qualified counsellors in the UK. Now a leading support network in the UK with over 10,000 qualified counsellors listed. Disability Rights UK Works to promote change by empowering disabled people to achieve their rights and expectations and by influencing the way that they, as disabled people, are viewed as members of society. The Disabled Living Foundation National charity providing free, impartial advice about all types of disability aids. The DLF provides useful factsheets and a dedicated website covering equipment for disabled children. The Encephalitis Society A national charity to support adults and children affected by Encephalitis, their families and carers by providing advice and information and working at a national and international level to improve services. Epilepsy Action The UK’s leading epilepsy organisation exists to improve the lives of everyone affected by the condition.  Also has a free helpline 0808 800 5050. Every disabled child matters The campaign to get rights and justice for every disabled child. Focus on Disability Guidance advice and information on benefits, allowances, care, mobility aids, transport and holidays.  HeadSmart campaign HeadSmart is a project that aims to enhance the awareness of symptoms of brain tumours in children and young people. Its website carries information on symptoms and additional information for parents and carers.   Headway Headway is a charity set up to give help and support to people affected by brain injury. A network of local Groups and Branches throughout the UK and Channel Islands offers a wide range of services, including rehabilitation programmes, carer support, social re-integration, community outreach and respite care. The services available will vary, depending on local needs and resources. I CAN Charity working to support the development of speech, language and communication skills in all children, with a special focus on children with a communication disability. Their Talking Point website provides information on communication disabilities. Mencap Charity working with people with a learning disability and their families and carers. Meningitis Now A national charity which aims to save lives and improve the futures of anyone affected by meninigitis by funding research, raising awareness and providing support.  The National Network of Parent Carer Forums This organisation brings together Parent Carer Forums from across the country. You can find information about Parent Carer Forums in your area.  Netbuddy More than 1,000 practical tips from people with first-hand experience of learning disabilities and special needs.   Parent Partnership Services A national network of local groups offering information, advice and support for parents of children and young people with special educational needs. Participation Works A consortium of children's organisations, including the National Children's Bureau, that provides expert advice to anyone wanting to give a voice to children and young people.  Scope Scope works with disabled people, of all ages, and their families, across England and Wales. It offers practical, everyday support and delivers campaigns that can change lives. Seeability Charity offering support to blind and partially sighted people with additional disabilities.  Sibs National charity offering information and support to brothers and sisters of disabled children and adults.  Sky Badger The Sky Badger charity finds help and adventure for disabled children and their families in the UK. They do this by building bridges between disabled children and the charities and services available to help. They find everything from disabled sports clubs to sibling groups to ‘make a wish’ charities and tell families about them though its website, social media platforms, videos, information packs and an e-helpdesk. Special Friends Online is a free unique worldwide social networking website for people with learning/intellectual disabilities, their parents, carers, family members and professionals. Together for Short Lives Together for Short Lives is a UK-registered charity striving to achieve the best quality of life and care for all children and young people with life-threatening or life-limiting conditions and their families.  Whizz-kidz Whizz-kidz provides children with customised mobility equipment, training and advice. Young Epilepsy A national charity which exclusively supports the 112,000 children and young people aged 25 and under with epilepsy and their families.

Grant giving & trusts

The Danny Green Fund Helps children in the UK under the age of 16 who have Posterior Fossa Syndrome. It provides grants for the provision of a piece of equipment or physiotherapy, hydrotherapy or horse riding therapy to help rehabilitation and to assist recovery. The Family Fund Provides timely grants to families with severely disabled children, based on families' views and needs. Family Fund Extra offers discounts and savings on high street goods.  The Family Fund also has a travel insurance product for families of children with disabilities.

The transition to adulthood

Preparing for Adulthood Preparing for Adulthood is a two year programme funded by the Department for Education as part of the delivery support for 'Support and aspiration: A new approach to special educational needs and disability' green paper.  The Transition Information Network The aim of this website is to provide information about the transition process that is useful to professionals and parents/carers. There is also a section for young people themselves, with information, news and events.

Brain injury networks

The UK Acquired Brain Injury Forum (UKABIF) UKABIF provides networking opportinities for professionals, service providers, planners and policy makers to raise the profile of acquired brain injury and campaign for better services in the UK.  Its website is a useful information and signposting resource.

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