We offer clinical screening, advice and onward referral to all children and young people across the UK with a confirmed or suspected acquired brain injury. This may include children with a concussion.
This voluntary funded service provides the initial support needed when a child is discharged from hospital to home. The service also provides this support to children who may be referred sometime after their initial injury or illness, in some cases many years later. This may be because the effects of the injury may not be obvious for some time.
A referral can be made by anybody involved in the child’s care or interested in their well-being – GP, consultant, therapist, teacher or parent. For a child with a newly acquired brain injury, contact will be made with the family approximately six weeks after hospital discharge. For an older injury or a re-referral, this will take place within two weeks of referral.
This support will involve:
- a clinical screening conducted initially via telephone to determine the child’s needs and the support required
- telephone calls to other professionals involved in the child’s care to gather further information to support identification of needs
- provision of advice where appropriate
- up to two visits, either in the child’s home or at school, or a mixture of the two, to provide specific brain injury education and advice, and develop an action plan
- onward referral into local community services, or our specialist multidisciplinary team
Our clinical specialists work collaboratively with the family, school, local teams and other agencies. This part of the service may be sufficient to meet a child’s needs, however they could be re-referred at any time if new needs arise.
Community-based neurorehabilitation skills packages
If the child has needs that would benefit from specialist multidisciplinary input and this is not available via local services, we are able to offer neurorehabilitation packages delivered in the community, subject to funding. These are delivered by our multidisciplinary team and includes interventions delivered at home, in school, or a combination of both settings.
The child is able to access our comprehensive interdisciplinary assessment and consultation package, and/or skills packages (see ‘How the service works’ for further information) to target specific areas of need. The clinical specialist will recommend the most appropriate support package. Integral to each skills package are baseline assessments, outcome measures and goal setting with the child and family.
Left unsupported, the difficulties children and young people with acquired brain injury face can have a long-term impact on the child’s academic, social and personal development.
Children and young people can have particular difficulties at key transition stages, such as starting school, moving to secondary school or college. Our long-term register provides systematic monitoring at these key stages. Contact is made by telephone to carry out a clinical screen and determine if new needs have arisen that require support. Joining the register is optional.