Mum's marathon challenge for The Children's Trust
The mum of a teenager who attends The Children's Trust School is in training for a marathon to raise money for the charity. Jan Maybury, 44 is running this year's Virgin London Marathon on April 21 2013 and aims to raise £1,800 for the Trust. Her friend, Debra Bishop is also running for the Trust. Mrs Maybury's son, Mark, 18, has a rare chromosomal condition, which means he cannot walk or talk, is now blind, has poor hearing, a hole in the heart and epilepsy. The mum-of-four, said the Trust has thrown Mark a "lifeline", adding: "Mark's conditions means he needs continual care. "He originally went to the Trust only during school holidays so we could give some quality time to his brother Alec, who was very young at the time. "It became increasingly more difficult for us to manage Mark's needs at home. He needed feeding tubes inserted into his tummy for nutrition and medication and he was on eight different medications six times a day!" Although Mark attended a specialist school, consistent chest infections meant he only went about five months in the year and it was decided more intense care was needed. Mark, who was seven at the time, started staying at the Trust and went home to his family every other weekend. However his eyesight started to deteriorate and as a result both his retinas detached, leaving him blind. Since then Mark has been a residential learner at the school, where he is involved in a 24-hour multi-sensory curriculum. » Click here for more information about our curriculum Mrs Maybury said: "It wasn't an easy decision for the family to make but it was imperative that we did so that he could get this amazing care! He has one-to-one attention and the staff know Mark's needs inside out which is so reassuring. We know that there are many other children who are also in desperate need of help, if only we could throw them a life-line too." "I hope that by running the marathon I will be able to raise sponsorship money to help keep funding the vital equipment and care that the dedicated staff at the Trust provide to ensure Mark and many other young people have the best possible quality of life."