The government has implemented new guidelines following our Stop the DLA Takeaway campaign.
The government has scrapped the rules that previously stopped payments to children who are in hospital.
It is a fantastic victory for our Stop the DLA Takeaway campaign and means that children will no longer be denied Disability Living Allowance (DLA) or Personal Independence Payment (PIP) when they need it most.
The campaign was launched by The Children’s Trust and Contact a Family in 2010 and focused on a legal challenge by the family of Cameron Mathieson.
Cameron from Warrington had very complex medical needs and passed away in October 2012 at the age of five, having spent more than half his life in Alder Hey Hospital. His family challenged the Disability Living Allowance '84-day rule', whereby DLA is suspended for under-16s when they spend more than 84 days in hospital. The Children’s Trust and Contact a Family supported his campaign so that no other family with a disabled child who spends long periods in hospital will have essential benefits taken away from them.
We have been campaigning with the Mathieson family to raise awareness of the issues and need for continued support while children are in hospital. We also commissioned a research study, DLA in hospital with Contact a Family which was cited at The Supreme Court in support of the case. The court ruled unanimously in favour of the Mathieson family. This ruling, together with the support of many campaigners who got behind the cause, has resulted in the government scrapping the rules for good.
The new law came into force 29 June and is an incredible legacy for Cameron Mathieson - you can read all about the new law here.
Thank you to everyone who joined the campaign and contributed to the campaign – your support will means that hundreds of families of the most disabled and poorly children will no longer be denied crucial financial payments when they need it the most.
You can read more about the Mathieson’s story here.